The articles below are of of special interest to me

because my relative died of the condition soon after birth. 

He had Hirschsprung’s Disease with Congenital Central Hypoventilation Syndrome

 

Links compiled by Nancy Allen

British Boy Can't Fall Asleep Without Fear of Dying

Congenital Central Hypoventilation Syndrome

or Ondine's Curse

 

Congenital Central Hypoventilation Syndrome

Includes Haddad Syndrome

 

Central Hypoventilation Syndrome, Congenital; CCHS

Ondine-Hirschsprung Disease, Haddad Syndrome

 

Congenital Central Hypoventilation Syndrome

Lifelong breathing disorder

Ondine's curse from Wipipedia

Congenital Central Hypoventilation Syndrome and

Hirschsprung's Disease, Haddad Syndrome

 

PHOX2B Genotype Allows for Prediction of Tumor Risk in

Central Hypoventilation Syndrome

 

Congenital Central Hypoventilation Syndrome (CCHS)

Offers Clues to SIDS, Sleep Apnea

Some have brain damage in the article

Congenital Central Hypoventilation Syndrome and Hirschsprung's Disease

HOMEPAGE